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Organ Donors Behind Bars
INTRODUCTION Nicole Bengiveno/The New York Times Utah recently became the first state to explicitly permit general prisoners – not death-row inmates – to donate their organs if they die while...
View ArticleWith Down Syndrome Diagnoses, Comes a Wrenching Choice
As prenatal tests proliferate and come earlier, more couples are arriving at a medical crossroads. Featuring Berman Institute Director Ruth Faden
View ArticleUS Patient Protection Agency Drops Plan to Sanction Leaders of Infant Study
Under fire from researchers and ethicists, the US govt agency responsible for protecting patients in scientific studies is backing away from a decision to sanction the leaders of a clinical trial...
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Should Medical Research Be Part Of Medical Practice?
Our Nancy Kass was the featured guest today on Maryland Morning with Sheilah Kast, WYPR, discussing a proposal to rethink the division between medical research and medical practice. Dr. Kass and...
View ArticleEthical Issues in Patient Safety Research
A new guidance document has been published by the World Health Organization Ethical Issues in Patient Safety Researc (download – pdf) Interpreting existing guidance Q&A from the WHO “What is this...
View ArticleIs It Safe to Take Medication While Pregnant?
It isn't unethical to test drugs on pregnant women. It’s unethical not to. Anne Drapkin Lyerly & Ruth Faden, another founder of the Second Wave Initiative, argue that pregnant women are often seen...
View ArticleLacks’ Family to Have Say in Use of Her Genetic Material
Ruth Faden, who will serve on the new working group and was part of the discussions with the Lacks family, said,"For NIH to take a step like this is huge, and it needs to be underscored that it will...
View ArticleThe Legacy of Henrietta Lacks
Our Ruth Faden was the featured guest today on Maryland Morning with Sheilah Kast, discussing the legacy of Henrietta Lacks and the recent agreement between the NIH and the Lacks family that will...
View ArticleMothers Matter
This spring—and for the first time in 30 years—the U.S. Food and Drug Administration approved a medication for the treatment of nausea and vomiting associated with pregnancy (NVP). Though the condition...
View ArticleBI In The News: Ending Unethical Force-Feeding
Experts in health and ethics have been speaking out this week against US government-sanctioned force-feeding of prisoners on hunger strikes at Guantanamo Bay Prison and elsewhere, and Berman Institute...
View ArticleBioethicists: Patient Consent Not Always Necessary
Under the right conditions, full informed consent is not ethically required for some types of health research, according to leading bioethics experts. The experts focus in particular on the comparison...
View ArticleComparative Studies: No Informed Consent Needed?
The key requirement is that patients know that they're getting care at an institution that integrates such research into clinical care -- what's termed a learning healthcare system, Ruth Faden and...
View ArticleBioethicists Say Patient Consent Not Needed in All Comparative-Effectiveness...
“Current consent and oversight practices too often overprotect patients from research that has little effect on what matters to patients, whereas in other cases oversight practices under-protect...
View ArticlePublic Engagement Past and Present: From Gopher to Website
Feb. 2014 marks the 20th ann. of the Advisory Committee on Human Radiation Experiments (ACHRE). To make its work publicly accessible ACHRE created a “gopher,” what we now call a website, the first of...
View ArticleBirth Rights
Inside the social surrogacy debate, including commentary from Berman Institute Director, Ruth Faden
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Consent Required?
Berman Institute bioethicists Nancy Kass and Ruth Faden sent shockwaves through the bioethics and healthcare fields earlier this year with their commentary on informed consent, written with Tom...
View ArticleBerman Institute Directorship Inaugurated
The Johns Hopkins Berman Institute of Bioethics has marked a milestone in its history, and in the field of bioethics, with a ceremony installing Ruth R. Faden as the inaugural Andreas C. Dracopoulos...
View ArticleWhy Some Doctors Object to TN Law That Criminalizes Drug Use During Pregnancy
Dr. Ruth Faden said that instead of giving addicted new mothers access to treatment to help them be better moms, the law rips them from their newborns, which isn’t in the best interest of the child
View ArticleDo Personhood Laws Protect Or Harm?
Ms. DeSamito and Ms. Loyola have been arrested/detained because of the increasing push to pass so-called personhood laws. These laws, though they vary by state, recognize fetuses, embryos and...
View ArticleThe Role of Deception in Scientific Research
Deception May Be a 'Necessary Tool,' but New Methods Are Prompting Scientists to Reconsider. With comments from Berman Institute Director Ruth Faden
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